Exclusive Interview With NORD for Rare Disease Day 2022

Join us as we chronicle the courageous moms who have confronted their child’s rare disease diagnosis, serving as passionate advocates, care providers, and emotional support, and unyielding in their commitment to provide the best for their child.

Plus, meet Lesli Nordstrom, NORD’s Director of Marketing and Communications, as we announce an exciting partnership to continue to advocate for the rare disease community.

NORD is the official U.S. sponsor for Rare Disease Day, an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Lesli Nordstrom shares how everyone can get involved with their #showyourstripes campaign.

Lesli also shares how they are working to achieve health equity in healthcare and provide much-needed resources and support to patients and caregivers. Our exclusive interview also introduces Behind the Mystery’s partnership with NORD, where we are joining forces to provide compelling patient stories, increase awareness, and share tools and resources for the rare community.